I contribute, do you?

November 1, 2010

Hello everyone,

We are creating a pool of donors who can contribute monthly for needy patients of Thalassemia & for our Fight Against Thalassemia campaigns, If any of you are interested to become a donor, let me know.

Our plan is to gather donors then according to the monthly contribution we will be sponsoring few non affording Thalassemia patients. And rest of the contribution would be used in our campaigns (blood camps, screening camps & awareness seminars).

You can even donate 100RS, interested people please drop in your email id and you will be added to our pool of donors.

To contribute there are three options, (1) PayPal (2) Bank transfer (3) Personally handing over! 🙂

-Ayesha Mehmood
Official Spokesperson

FAiTh on The First Blast @ Dawn News

January 24, 2010

On the last day of 6th National Thalassemia Conference & Workshops I got a call from Dawn News that they wanted to interview me, it was indeed a pleasure to know that FAiTh is being given a chance to prove themselves.

On 30th December I gave interview at their studio, along with me there were Dr. Waleed Bin Azhar – CEO Fatimid Foundation, Karachi.

I have got the complete show video uploaded for you guys.

Dr Waleed tell what’s thalassemia, its issues, complications, etc. [Video 1 & 2]

I was called to be a motivational figure and I talked about life with thalassemia. [Video 3]

Mr. Nafees talked about his two children who were thalassemia major but couldn’t survive. [Video 4]

Thalassaemia victim dies guiding others

October 30, 2009

Courtesy: Dawn.com

ISLAMABAD: ‘Should I rejoice that we’ll soon have a thalassaemia bill … or should I be sad that Salman isn’t among us to celebrate this news?’ wrote Ayesha Mehmood on her blog.

Ayesha is the sister of an unsung hero, late Salman Mehmood, who was running a website for the awareness of thalassemia patients.

After four days on ventilator, Salman succumbed to spinal meningitis at the Aga Khan University Hospital in Karachi on Monday.

Salman, also a thalassemia patient, was successfully running a website (www.thalassemia.com.pk) for the past few years from his home in Karachi.

The site was Salman’s contribution to spread the word about thalassemia – information otherwise not easily available.

‘We intended to create a general, massive awareness about the illness and to motivate people to support thalassemia patients’ Ayesha, also a thalassemic patient, told Dawn.

‘Salman was always on his toes to let the people know about the disease and was very social among internet users across the world and was managing the bread and butter for the family,’ 22-year-old Ayesha said.

She said: ‘The idea of developing an online medium was to facilitate people and families with thalassemia while all the information and support came from Salman.’

‘My father died few years ago while our elder brother also expired when he was 17 years old who was suffering from thalassemia, and now we are only two sisters and our mother’ she said.

The family is living in Garden West area in Karachi with no one to look after us.

‘Salman has done some awesome work and now I will continue his mission so we can save lives of many in future,’ she said.

Around 4,000 people from different countries have posted condolence messages and praised the efforts of Salman for creating an online awareness campaign with limited resources.

Ayesha asserted: ‘If we want to save our future generations, the government should make thalassemia tests mandatory for couples wishing to marry.’

Badar Khushnood, Pakistan’s Google representative, also a fan of late Salman, said: ‘He was a role model for the Pakistani youth and was a young entrepreneur. He has started earning from home through his website and without letting anybody know about his disease.’

‘I just learnt about him with his nick name – skdev – and also appreciated his work by commenting on his blog. Later, we met in a conference; Salman was a bright Pakistani as his work was truly commendable and he had helped.’

Meeting for Thalassemia Cause

October 29, 2009

Date: 27th October 2009
Time: 8:00 PM
Place: Usman Memorial Hospital, Karachi.
Cause: Thalassemia Awareness Further Plans.
Plans: Arranging more blood and awareness camps, getting mandatory tests bill passed in National Assembly.
People attended: Dr. Mustafa (Medical Director, Usman Memorial Hospital), Abdul Hameed Kath, Shamsuddin A. Noorani (Consultant- Alternative Medicine, DXN Intl. Pakistan), Musaddiq Hussain Lakhani (International Distributor, DXN Intl. Pakistan), Mustafa, Mr. Abid Beli and Mrs. Abid, Arsalan Nara, Asif Yahya, Hina Yahya, Hammad & Ayesha Mehmood

Discussion in points:

  • Explaining plan to Dr. Mustafa
  • Mr. Noorani & Mr. Lakhani brief introduction on alternative medicine (Red Reishi Mushroom)
  • Detailed discussion on Red Reishi Mushroom
  • Discussion over Hussaini Blood Bank and Transfusion centre & other centers
  • Dr. Mustafa’s idea of contacting Rafiq Khanani, who wants to do work in Thalassemia field
  • Arranging blood and awareness camps in Expo exhibition, colleges, universities & locality
  • Making arrangement for screening in discounted rate or free
  • Approaching bloggers, arranging competition to write detailed and best post about Thalassemia on their blog and win prize in the end
  • Gathering bloggers to write more and more about Thalassemia to make media pay attention to it
  • Writing letters to each and every ministry and try hard to pass mandatory tests bill passed in National Assembly
  • Making Thalassemia awareness brochure, CD

Drop your questions/advices/suggestions in Comment Box!

Salman Mehmood a.k.a SKDev (1985 – 2009)

October 23, 2009

Salman Mehmood the founder of Thalassemia.com.pk is no longer among us. He left this world at 2 pm PST on 19th October 2009 due to meningitis.

He was a thalassemic himself, 24 years old, working as a web developer for a US based company named ‘Directors Advantage’.

His dream was to save next generation from thalassemia, he wanted badly assembly to pass the thalassemia prevention bill and how unlucky of him that bill just got pass when he died…, he wanted to aware every single soul about thalassemia, he even mentioned his cause on a TV show, you can see the video on Youtube.

Rest about him I won’t write because other bloggers/journalist/writers have written on him a lot. As a brother he was a gem!

Am posting some of the articles/posts written on him, I will be including more whenever they are available to me:

In The Memory of Our Beloved Friend Salman Mehmood (@skdev)

Eternal Silence.. Dedicated to @skdev

Innal Lahi Wana Ilahi Raja’on

In the memory of Salman Mehmood

Salman (@skdev) will always live in our hearts

A Prayer for Salman – Inna Lillahi Wa Inna Ilaihi Rajeeoon

Those Who Met On The Way: Dedicated To Salman Mehmood #skdev

Gone too soon…

@skdev still alive in our hearts

Prayers needed

Pak thalassemia patient who blogged about disease, dead

The Laidback Show episode dedicated to Salman Mehmood

The Deduction

Salman Mehmood of ApniISP

Never too late … but …

Is there no hope?

My Friend, Salman

Thalassaemia victim dies guiding others

Bange-Dara [076] – The People’s Voice – Tribute to Salman

Blogger Salman Mehmood Died

If am missing any article that you know please mention, I want to gather all those articles/videos/posts all on one place.

May Allah grant him the highest rank of Jannah! ameen

-Ayesha (Salman’s Sister)

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