We began our Sponsor a Child program in 2011 with a hemophilia patient on a special request, since then Fight Against Thalassemia has sponsored a lot of thalassemia fellows.. some for treatment, for education, tests, etc.
Alhamdulillah not a single month passed when any fellow enrolled with us wasn’t provided their required medicines and all this has been made possible with the help of our amazing donors, their trust has made this journey easy for many of our fellows.
5 years and counting thank you so much everyone for the support, help, love and trust
This post is to share our Ramadan & Eid drive overview and to convey heartiest thanks to our amazing donors, without their support this couldn’t have been done!
We started the drive from Fatimid Foundation Hyderabad, where we distributed 26 rashan packets worth 4000/- each with month’s food supply Alhamdulillah.
Next we went to Fatimid Foundation Khairpur where we celebrated FAiTh’s late founder Salman Mehmood & our member Hammad’s birthday with thalassemia fellows. 75 fellows received Eid dresses, mehndi, bangles & watches. Volunteer applied mehndi to little thalassemia fellows.
Our next stop was Fatimid Foundation Rashidabad, where we distributed 75 Eid dresses, mehndi, bangles & watches.
Our Ramadan & Eid drive came to an end with 2 days of iftar for 140+ fellows at Fatimid Foundation Karachi, 10 rashan packets, 70+ Eid dresses, mehndi, bangles & watches Alhamdulillah.
Words would never be enough for our generous donors, without their continuous support we couldn’t have done it. Thanks to all the donors!
Ramadan & Eid Drive Pictures : https://www.facebook.com/FightAgainstThalassemia/photos/?tab=album&album_id=254197111621260
Ramadan & Eid Drive Videos :
Fatimid Foundation Karachi
Address: Head Office 393, Britto Road, Garden East, Karachi.
Muhammadi Thalassaemia Center Karachi
Address: Rafi Mansion, Ground Floor Opposite Airport Police Station, Shahrah-e-Faisal Karachi
Phone: Karachi 021-34589961-2
Kashif Iqbal Thalassaemia Care Center Trust Karachi
Address: A-19 Street # 1,Mujahid Colony Block 10-A ,Dalmia cement Factory road,Gulshan e Iqbal Karachi
Phone: 021-34981190,0333-3207360, 021-34987202 Fax: 021-34814652
Burhani Blood Bank and Transfusion Centre Karachi
Address: St-1, Block “F” , North Nazimabad, Karachi
Afzaal Memorial Thalassemia Foundation (AMTF) Karachi
Address: 2nd & 3rd Floor, BNH, Plot No. ST-1C, Block-10, Ayesha Manzil, F.B.Area, Karachi-75950
Phone: 021-36365641, 021-36366452
Omair Sana Welfare Foundation (B.T.I.H) Karachi
Address: A-572, Block J, North Nazimabad Karachi.
Phone: +92-021-6624736 – 0300-2118018
Husaini Hematology Oncology Trust Karachi
Address: 43- Rehmat Manzil Burgary Road Karachi.
Phone: +92-21-2230529- 2230531
Kaim Khani Welfare Health Centre Sukkur
Address: A-7, Fourth Floor, Nimco Centre, Cambell Street, Karachi.
Fatimid Foundation Hyderabad Centre Hyderabad
Address Red Cresent B meeran Shah Road Near Dialdas Club Hyderabad.
Phone: 022-2786655, 022-2728241
Zainabia Blood Bank and Thalassaemia Center Hyderabad
Address: Zainabia Plaza opp. Al-Rahim Shopping Centre Sarfaraz Road Hyderabad
Engro Thalassaemia Center Sukkar
Address: Sukkur Blood & Drug Donating Society,Opp. Eidgha, Sukkur
Thalssaaemia Welfare Society Nawabshah
Address: Peoples Medical Hospital Paediatrics ward Nawabshah, Sindh.
Phone: 0300-2706891- +92- 0244-366233
Mehran Blood Donari and Welfare Centre Sanghar
Address: Mehran Blood Donari & Welfare Association, Station Chowk Tando- Adam, Distt. Sanghar Sindh
Thalassaemia Care Citizen Community Board Badin
Address: Thalassaemia Care Citizen Community Board Badin, Civil Hospital Road Badin.
Phone: +92- 0297-810334- 862114, 0333-2529938
Fatimid Foundation Khairpur Center
Address: Opposite Nadra Office, Old National Highway, Near Radio Pakistan, Khairpur (Mirs)
Phone: +92-243-714071, 714072, 551647
Note: If you are not in Karachi then visit any Thalassemia Center in your city/country and donate blood on the same day… lets bring change together! =)
Alhamdulillah FAiTh [Fight Against Thalassemia] is gaining its place in people’s life, heart, mind and now it secured its position in TIF [Thalassemia International Federation] Magazine 🙂
Please click on image for larger view
They were a controversial couple on Bigg Boss Season 4 and made headlines for their public display of affection. Ashmit Patel and Veena Malik are in the news again. The two have decided to work together, but for a cause.
Ashmit will help Veena carry out awareness campaigns for her charity in Pakistan that works for thalassemia patients. The two will travel across India and Pakistan to bring awareness about the disease among the people.
A thalassemia minor himself, Ashmit confirmed the news, “We are indeed going to carry out this program. We also plan to provide monetary help to the patients, as the treatment is very expensive. The other details are yet to be worked out about this drive.”
We wish them all the best in their noble cause.
“I have seen broken marriages, deserted children and family feuds just because of this one disease,” says Dr Haroon Memon. He has been treating thalassemia patients for years in interior Sindh and is thoroughly aware of the devastation the disease has and can cause.
Working at the Thalassemia Care Centre in Badin, Dr Memon heads the facility where patients flock from eight districts of the province for a cure. The centre was built under the US Agency for International Development’s (USAID) District Grants Programme in 2005 and now functions with the help of Badin’s district government.
Victims of the inherited blood disorder — that results in severe blood shortage — suffer from an increase of iron in their bodies, diabetes and other major side effects. In the rural parts of the country where poverty, lack of resources and illiteracy result in the late or no diagnosis of the disorder, the social implications become more prominent than the physical ones. Pakistan is counted among those less-developed countries where thalassemia patients are multiplying at a very fast rate. Although no proper research has been done in the country, experts say almost seven per 100 people are carriers, known as thalassemia minors. The carriers are normal themselves but have the potential to transmit it to the next generation causing thalassemia major.
When two carriers reproduce, there are 25 per cent chances that the child will be normal, 25 per cent chances that he or she will have thalassemia major and 50 per cent chances that the child will also be a carrier, says Dr Memon. Therefore a large proportion of thalassemia patients are children.
There is growing concern that thalassemia may become a very serious problem in the next 50 years – one that will burden the world’s blood bank supplies and the health system in general.
With the requirement of a bottle of blood almost every few days, the life of a thalassemia patient is like that of a car, one whose engine runs on fuel, explains Dr Memon. In such a scenario, prevention not cure is what needs to be done to fight the genetically transmitted disease.
In Sindh, most people suffer from beta thalassemia, which is one of the most familiar types. It involves decreased production of normal adult haemoglobin (Hb A), which is the predominant type of haemoglobin.
(All haemoglobin consists of two parts: heme and globin). The globin part of Hb A has four protein sections called polypeptide chains.
Two of these chains are identical and are designated as the alpha chains. The other two chains are also identical to one another but differ from the alpha chains and are termed the beta chains. In people with beta thalassemia, there is a reduced or absent production of beta globin chains.
Dr Memon says that there are patients at his centre who, because of continuous blood transfusions, have developed a concentration of iron in different parts of the body and have to be treated for that. The iron concentrates in the heart, pancreas, liver, spleen and the endocrine glands, he adds.
Such children show signs of a ballooned stomach, broader forehead and jaw bones and prominently bad teeth.
Our job is to maintain the haemoglobin level of the thalassemia patients at 10.5 grams, to control the iron concentration in different parts of the body and to counsel the parents, says Dr Memon.
Law in the making
Concerned doctors are lobbying for a law to be passed for the identification of carriers in the province, informs Dr Saqib Ansari, a haematologist at the National Institute of Blood Diseases (NIBD). “In the year 2010, close to the World Thalassemia Day (May 8), the Sindh Assembly adopted a resolution to make the thalassemia test a pre-condition for nikah, but it could never be formed into a bill,” he says. Dr Ansari claims that this will successfully reduce the danger of thalassemia transmission without stigmatising women.
Meanwhile, Dr Ansari also says that a fatwa has been taken that allows a child with thalassemia major can be aborted before the 16th week.
The government needs to realise that apart from human suffering, supporting thalassemia patients is a huge financial cost, he says. “The disease needs to be controlled before the numbers shoot up.”
Courtesy : nation.com.pk
Punjab Health Department will establish Thalasemia Centre at Children Hospital Complex Vehari in collaboration with Plan Pakistan, an international NGO.
The Children Hospital Complex Vehari is a joint venture of Public-Private partnership, which was established by Plan Pakistan and Health Department’s efforts. The Hospital has now earmarked space for establishment of Thalassemia Canter as well.
Health Department will provide Human Resource, U-fone will supply equipments and one time medicine worth Rs 2 million and Plan Pakistan would cooperate for technical and skill enhancement of the human resource made available by the government. U-fone also donated furniture for this center.
Two trained nurses, two data management computer literate supervisor led by a lady doctor will maintain and manage database. Families with positive history of Thalasemia will be provided counselling regarding adverse effects of cousin marriage.
Nishter Medical College, Department of Nuclear Medicine, Multan will do sampling and later skilled staff in Children Hospital will be trained for this purpose.
National Institute of Biogenetic Engineering Faisalabad will be responsible for genetic analysis of the cases.
All treatment at the Thalasemia center would be provided free of cost.
The project is aimed to facilitate the treatment availability in a child friendly environment, encourages parents to make informed decisions and thus reduces the burden of disease and sufferings of the child and parents.