JBL donates for Thalassemia Centre

September 7, 2010

Courtesy: nation.ittefaq.com

Janata Bank Ltd (JBL) has donated Tk 18 lakh for Thalassemia Centre of Dhaka Shishu Hospital to ensure the treatment of thalassemia affected poor children.

Prof Dr. Abul Barkat, Chairman of the Bank handed over a cheque of said amount to the President Prof Dr. Waqar Ahmed Khan of Thalassemia Centre of Dhaka St1ishu Hospital at the board room in Head Office of JBL in city recently.

Among others Directors of this bank Md. Enamul Haq Choudhury, Md. Nazibar Rahman, Chowdhury Abdul Quayum, Adv Balaram Podder, Dabir Uddin Ahmed, AKM Shahjahan Kamal, Dr RM Debnath, CEO and MD SM Aminur Rahman, DMD Dr. Md. Zillur Rahman and Prof Dr Bilquls Banu of Dhaka Shishu Hospital were present on the occasion.

BRAC Bank employees donate blood for Thalassemia patients

November 16, 2009

BRAC Bank recently held a voluntary blood donation program at its head office in the city.

Employees of the bank donated blood for the patients of Bangladesh Thalassemia Hospital.

‘We collected blood after necessary health screening. It was impressive to receive such enormous response from a private organization. We hope this will remain as a wonderful example and other organization will also follow through. This is how we will create awareness of thalassemia from the forefront’, said Advisor of Bangladesh Thalassemia Hospital Mustafizur Rahman Khan.

BRAC Bank has always been active as a socially responsible corporate house. This time, the bank went one step further: having the employees individually contributing for a great cause. ‘We have tried to be engaged with the society. This endevour is another step towards living closer to you.’, says Managing Director and CEO of BRAC Bank, AEA Muhaimen.

BRAC Bank earlier also supported awareness campaign against thalassemia through various initiatives.

Call for increased awareness of thalassemia

August 17, 2009

Courtesy by: theasiannews.co.uk

Despite thalassaemia mainly affecting those of Asian heritage, the vast majority of British Asians admit they have never heard of the potentially fatal genetic blood disorder.

New research shows that nearly two-thirds (63 per cent) have either never heard of the disease or know little about it.
Ignorance is particularly prevalent in the young, with more than seven-in-ten unaware of the disease.

According to the survey, supported by the UK Thalassaemia Society (UKTS), of those who had heard of the condition only half knew that the severe form can be fatal. While carriers of beta thalassaemia are normally healthy, a fifth of survey respondents also admitted there was a stigma attached to being diagnosed with thalassaemia among the Asian community – with a third of people admitting they would hide the fact that they suffered from the disorder and only 55 per cent saying they would tell their family about their condition.

Thalassaemia refers to a group of genetic blood disorders that affect the body’s production of haemoglobin, the oxygen-carrying component of red blood cells. The most severe form of the condition, beta thalassaemia major, can be fatal. Those affected – and there are currently over 700 sufferers in the UK – do not produce enough healthy mature red blood cells, which are vital in carrying oxygen around the body.

If a man and woman who are both carriers have children together, there is a 25 per cent chance with each pregnancy that the baby will be born beta thalassaemia major. An early symptom of this most severe form of thalassaemia is acute anaemia before the age of one.
Those affected then need regular transfusions plus constant medication and monitoring throughout their life to prevent dying from their condition.

Commenting on the research findings, Elaine Miller of the UK Thalassaemia Society said: “It is really quite shocking that awareness of the condition remains so low amongst those most vulnerable to the disorder. We urgently need to address this issue and de-stigmatise Thalassaemia amongst British Asians.”

On learning about the disease, over 90 per cent of respondents called for increased awareness of the condition.

Approximately 214,000 people in the UK carry the gene that passes the condition through the generations, and 79 per cent of sufferers have parents of Indian, Pakistani or Bangladeshi origin – the UKTS are committed to encouraging these groups to visit their GP in order to be tested for the thalassaemia gene.

The All Party Parliamentary Group summer reception for thalassaemia and sickle cell took place on Tuesday (14 July) to highlight the efforts of the UKTS in bringing thalassaemia to the forefront of political activity.
For more information visit http://www.ukts.org

Make thalassaemia test compulsory

May 7, 2009

Courtesy by: bdnews24.com

Dhaka, May 7 (bdnews24.com)–Call to make thalassaemia screening compulsory in marriage registration came from a group on the eve of World Thalassaemia Day on Friday.

Bangladesh Society of Haematology aired a 17-point charter of demands at a discussion meeting at the National Press Club in Dhaka on Thursday

Thalassemia is genetically transmitted blood disorder that prevents production of haemoglobin, the blood protein that carries oxygen in the body.

According to the World Health Organisation, around 4 percent people are carriers of beta thalassaemia in Bangladesh., said Dr Salahuddin Shah, general secretary of the society. Each year around 6000 children are born with the disease, he said.

Thalassaemia causes iron deficiency in the body like anaemia which can be cured by taking medicine or iron-rich food but it cannot be cured by taking medicine.

Its treatments include regular blood transfusion and bone marrow transplantation, among others.

A person who has one thalassaemia gene is said to have the thalassaemia trait. He remains healthy but can pass the gene on to his children.

If both parents carry thalassaemia trait then the chance of having a child with thalassaemia, then the chance of having a child with thalassaemia trait is 50 percent.

If only one parent carry thalassaemia trait then the chance of having a child with thalassaemia trait is 25 percent and the chance of normal child is 50 percent.

The other demands are introducing haematology department in all government medical colleges, modernising blood banks, setting up DNA lab in at the BSMMU, setting up bone marrow transplantation centre, giving subsidy on medicines used for removing excess iron from the body and forming a thalassaemia federation.

Tourism minister GM Quader put emphasis on starting a social movement for having mandatory thalassaemia certificate in marriage registration.

Prof Md Jamilur Rahman, president of the society, and ABAM Yunus, professor of the haematology at BSMMU, were present also attended.

In quest of comprehensive treatment facilities

March 13, 2009

Courtesy by: TheDailyStar.net

Thalassaemia is an inherited blood disease. In thalassemia, the genetic defect results in the formation of abnormal haemoglobin molecules, and this in turn causes the anaemia which is the characteristic presenting symptom of the thalassemias.

Other consequences of the disease are deposition of iron from the haemoglobin affecting the reticuloendothelial system of the body.

So the mainstay of thalassaemia treatment is blood transfusion at a regular interval and removing of iron from body by iron chelating agents.

If this can be maintained strictly, thalassaemia patients can also lead almost a normal and productive life. But most of the cases it does not happen. There remains various causes behind it.

First of all, patients seriously lack from proper knowledge about how to manage the disease and other important issues. Secondly comes the crisis of quality blood frequently. Sometimes patients get infected from poor quality blood. Thirdly, many patients cannot maintain the iron chelating agents. Sometimes availability of drug is a problem, while most often not maintaining a proper guideline is the serious issue.

Above all, handling all these issues from the childhood, patients and their families are very exhausted. Many patients are quite in a fix what to do, where to go and with many more questions.

During treatment, proper evaluation and monitoring of the patients are very crucial which are not maintained very often.

To handle all these crises of the thalassaemaia patients, Bangladesh Thalassaemia Foundation (BTF) has come forward with their comprehensive thalassaemia treatment centre named “Asha Thalassaemia Centre” in the capital.

Dr Abdur Rahim, Secretary General of Bangladesh Thalassaemia Foundation informed Star Health that they have opened the centre with a view to mitigate the problems of the patients from one stop centre. At this centre, they maintain a database of their registered patients by which they monitor their status and communicate with them in time.

“Patients in our country are not properly aware of this disease properly. We are also trying to make them aware of it so that they can cope with the disease easily”, told Dr Rahim in a brief interview at his centre.

BTF offers the source of quality blood to their patients, provides iron chelating agents from the centre, monitor the health status of the patients by the doctors at the centre, manage discounted tests from renowned laboratory. Above all they communicate with their patients frequently and when needed.

For the awareness about the disease, BTF provide proper guideline for medical care and counseling not only to the patients, but also to the physicians.

Each thalassemia patient has his or her own specific needs. Staffs of BTF hope that their comprehensive services will make a meaningful difference in both the quality and quantity of life of thalassaemia patients in the country.

The Asha Thalassaemia Center is located at 44/2, Chamelibag, Shantinagar, Dhaka 1217, Bangladesh. Phone 88-02-8332481, 01190840191 email: info@thals.org web: http://www.thals.org

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