I am a Thalassaemic Major Patient and i am getting blood transfusion from husaini thalassaemia center ,Would like to take your kindly attention in some problems which me & my other thalassaemic frnds face in our thalassaemia center.
They provide us Desfonak 500 & Deferoxir 500 injection which is useless for iron chelation, because of that low quality injection we face body pain and also our body iron is not getting out with this type of local IRANIAN injections.
Another problem is about environment , The temperature of transfusion room is very high and hot, because always AC is not working and fans are not enough for the room capacity.
So i humbly request to All trustes of Husaini Thalassaemia Center and All members of thalassaemia Federation, kindly take immediate action about this matter.
Do some action instead of only speeches in thalassaemia conferences.
Sadly we don’t know the identity, the sender doesn’t wish anyone to know who is he/she.. since he is afraid and says “I unable to disclosed my identity because i am registered patient in husaini and if they know me they creates problem for me.”
We hope the trustees of Husaini get the email and resolve the issues of our thalassemia fellows.
If anyone want to stay anonymous and want us to share any problem please let us know, we will raise the voice inshaAllah.
If anyone knows trustees or any high official at Husaini please forward this to them, you might help thalassemia community 🙂