EMPOWER THALASSEMICS..!

December 6, 2016

ہم نے ایک فیس بک گروپ تشکیل دیا ہے جہاں آپ اپنی جاب ، صلاحیت یا بزنس کی مشہوری کر سکتے ہیں۔

اگر آپ کوئی بزنس کر رہے ہیں، اپنے پروڈکٹ پوسٹ کریں، بلا تکلف ہو کر کسٹمر بنایں، سیل بڑھائیں۔

اگر آپ کوئی جاب کررہے ہیں تو جاب کی تفصیلات پیان کریں، کیا معلوم آپ کو کوئی پارٹ ٹائم جاب مل جائے جو آپ باآسانی گھر بیھٹے کر سکیں۔

اگر آپ میں کوئی صلاحیت ہے، جیسے کہ پینٹنگ، کمپیوٹر گرافکس، ویب ڈیزاننگ یا جو بھی صلاحیت ہے، اس کے نمونے اپلوڈ کریں۔

اس گروپ میں سیلرز صرف اور صرف تھیلیسیمیا میجر ہونگے اس کو آپ ہماری ایک چھوٹی سی کاوش سمجھیں تاکہ دنیا کو یہ بھی پتا لگیں تھیلیسیمیا میجر بھی کتنے باصلاحیت باہمت ہوتے ہیں۔

انشااللہ اس گروپ سے ہمیں بہت سے مواقع ، جاب ، آفرز ، سیل ملے گی جس سے اشااللہ تھلیسیمیا میجر اور خود مختار ہونگے۔

We have created a facebook group, where you all can advertise about your job, business, skills etc.

If you have any business, post pictures of the products you offer, generate sales.

If you are doing any job, you can define the nature of job, maybe you can get a part time job which you can do from home?

If you have any skill, like painting, computer graphics, web designing, etc.. show your work and generate sales..

Our group sellers will only be thalassemia majors, consider it a small contribution towards society to empower thalassemia majors & to let world know that thalassemia majors are no less than anyone 🙂

inshaAllah we will generate more sales, more leads, more offers from this group and will empower our fellows inshaAllah.

www.facebook.com/groups/YSG16

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EMAIL..

December 6, 2016

Email received yesterday at our official email id from a thalassemic.
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“Assalam-0-alikum,

Respescted Sir/Madam,

I am a Thalassaemic Major Patient and i am getting blood transfusion from husaini thalassaemia center ,Would like to take your kindly attention in some problems which me & my other thalassaemic frnds face in our thalassaemia center.

They provide us Desfonak 500 & Deferoxir 500 injection which is useless for iron chelation, because of that low quality injection we face body pain and also our body iron is not getting out with this type of local IRANIAN injections.

Another problem is about environment , The temperature of transfusion room is very high and hot, because always AC is not working and fans are not enough for the room capacity.

So i humbly request to All trustes of Husaini Thalassaemia Center and All members of thalassaemia Federation, kindly take immediate action about this matter.

Do some action instead of only speeches in thalassaemia conferences.

Thanking you,
Your’s Truly”

Sadly we don’t know the identity, the sender doesn’t wish anyone to know who is he/she.. since he is afraid and says “I unable to disclosed my identity because i am registered patient in husaini and if they know me they creates problem for me.”

We hope the trustees of Husaini get the email and resolve the issues of our thalassemia fellows.

If anyone want to stay anonymous and want us to share any problem please let us know, we will raise the voice inshaAllah.

If anyone knows trustees or any high official at Husaini please forward this to them, you might help thalassemia community 🙂


WINTER DRIVER 2016

December 6, 2016


Just like last year  we aim to cover 3 to 5 thalassemia centers this winter too, inshaAllah we will gift our fellows some injection desferal [180 Rs each], some infusion pumps [6000 each], some hoody [400 each] & some shawls etc.Last year we distributed desferal injections, infusion pumps, hoody, shawls to our fellow thalassemics in Fatimid Foundation Karachi, Hyderabad, Rashidabad, Khairpur & our team from Bahawalpur distributed them in Bahawalpur Victoria Hospital.

InshaAllah with your support we will do it again this year 🙂

If you wish to donate please contact us 🙂

Our last year activity pictures can be seen here :


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