SCB haematology wing acquires lab

October 31, 2009

CUTTACK: Diagnosis and detection of blood disorders has taken a quantum jump in the State with the Clinical Haematology wing of the SCB Medical College and Hospital acquiring a state-of-the-art laboratory to conduct complicated tests.

The advanced facility is equipped with a fully automated capillary zone electrophoresis machine, fully automated five part cell counter and a fully automated coagulometer besides other instruments. It is all set to acquire a flow cytometer to carry out advanced tests for detection of critical blood diseases like cancer. It would be installed by the end of November.

The haematological laboratory billed to be the only of its kind facility in the State and able to conduct all kinds of examinations is being set up at an investment of Rs 1 crore by the State Health Department.

Head of Clinical Haematology Dr RK Jena said the facility would speed up tests and save people from the problems of having to send the samples outside the State for accurate diagnosis of complicated ailments.

The electropherosis machine would enable testing of thalassemia, sickle cell anemia, multiple myloma and other types of blood cancer with accuracy of almost 100 percent. Presently, samples were sent outside or done manually which had high error possibilities. The cell counter would undertake blood cell examination while coagulometer would detect bleeding disorders like haemophilia. The soon-to-be-installed flow cytometer would be used to diagnose blood cancers.

Blood diseases like sickle cell anemia, thalassemia are highly prevalent in Orissa while more than 70 percent of the population is estimated to be suffering from anemia. Besides, cancers of the blood are also on an alarming rise.

According to Dr Jena, the costs of the sophisticated tests would come down drastically. Sickle cell anemia, thalassemia tests would be done at around Rs 250 against Rs 1000 now.


Piece of glass in another vial

October 31, 2009

Courtesy by: dailymirror.lk

A ward in the Thalassemia Centre at the Teaching Hospital in Kurunegala became the latest location where a vial containing an anti-biotic drug was found with a piece of glass.

When the medical staff got ready to administer the drug on the patients of the ward, the detection was made.

The nurse of the ward who detected the piece of glass in a vial containing Ampicillin had handed it over to the Chief Medical Officer of the Thalassemia Centre, Paediatrician Dr. Dayananda Bandara.

Dr. Bandara said that it was a very serious situation as the minute pieces of glass that could be present in the liquid drug could cause severe damage if it enters the blood stream and affect the heart, eyes, kidneys and the liver.

The possible coagulation blood around such a glass particle may block arteries and create severe heart conditions too, he said.

Dr. Bandara said that the Ministry of Health has been risking the lives of helpless patients by importing such low quality drugs. It is learnt that the drug was imported from India.


Man adopts 10 kids suffering from thalassemia

October 30, 2009

Courtesy by: timesofindia

RAJKOT: In an exemplary move, a philanthropist adopted 10 children suffering from thalassemia major and minor for a lifetime at a function here

on Thursday. Jagatsinh Jadeja will ensure regular blood transfusion of these children through out their lives.

“The major concern of the parents of a thalassemic child is regular blood transfusion to be done every two years. In order to relieve the parents of this burden, I decided to do my bit by taking responsibility of 10 children,” said Jadeja, former sarpanch of Ribada village.

Jadeja is also conducting a blood donation camp on November 3rd in the memory of his late brother Ramdevsinh Jadeja.

According to Gujarat chapter of Indian Red Cross Society, several government hospitals across the state are approached for adoption drive of thalassemia kids. Mostly, philanthropists in the memory of their deceased kith and kin go for such charity. “In the past nine years, there have been 18 blood donation camps organized especially for thalassemia patients,” said an official from the Red Cross Society.


Kids at Cong door for blood

October 30, 2009

Courtesy by: telegraphindia.com

Ten-year-old Ansila Abdul Aziz, a patient with thalassaemia from a village near Calicut in Kerala, was at the Congress headquarters today knocking on the corridors of power in Delhi to seek better medical treatment at home.

The Congress headquarters here had an unusual group of visitors today — about 30 children with chronic blood disorders and their parents and grandparents from the Malabar, seeking central intervention after years of agitation in vain in their state.

“Our children are suffering from thalassemia, haemophilia, sickle cell anaemia, and the medical college and hospital in our area (Calicut) does not have the right facilities for diagnosis or even treatment,” said Kareem Karassery, general convenor of the Blood Patients’ Protection Council from Mukkam, Calicut. Karassery lost his son to thalassemia two years ago.

A senior Congress official said he had never seen so many children throng the party headquarters. Some squatted on steel chairs, some played on the lawns, others looked on with quizzical eyes — while their parents pleaded for their future.

The council submitted a charter of demands at the Congress headquarters, seeking action from health minister Ghulam Nabi Azad. It wants a haematology department with specialists and infrastructure for the treatment of chronic blood disorders at the Calicut medical college hospital.

“Right now, patients have to travel all the way to the Christian Medical College, Vellore, for haematology services,” Karassery said.

The charter also seeks steps to prevent genetic blood disorders.


Blood disorder patients from Kerala’s Malabar march to Parliament

October 30, 2009

Courtesy by: twocircles.net

New Delhi: Chronic blood disorder patients and their parents from Kerala’s Malabar region today unsuccessfully tried to march towards the Indian Parliament to press the central government for their long pending demand of free and expert treatment to them whom the state government has so far neglected.

The protestors comprising women and children under the banner of Blood Patients’ Protection Council (BPPC) submitted a memorandum to the Union Minister for Health and Family Welfare Ghulam Nabi Azad demanding the government to provide free treatment to these patients suffering with deadly diseases like thalassemia, haemophilia sickle cell anemia, applastic anemia, leukemia etc.

BPPC has been fighting for better treatment to these patients of Malabar region for the last 15 years. The group has undertaken many agitations including a state secretariat march on February 28, 2001 with terminally ill patients demanding free and expert treatment from Calicut MCH. The Kerala Government has not shown interest to solve the problem. Now they have decided to take out a Parliament march.

Talking to TwoCircles.net Kareem Karassery, General Convener, BPPC, said: “For the last one and half decades we have been fighting for life saving drugs and expert treatment to these acute blood disorder patients but neither the state nor central government have so far heeded to our demand. So we have arrived here to highlight our issue at the national level.” More than 10,000 people are suffering from various blood disorders in Malabar region, he added.

The protestors have put 10 demands before the government. They include urgent prevention of genetic blood disorders and other birth disorders which are alarmingly growing Malabar area, setting up a health insurance for the complete treatment of acutely ill patients irrespective of their income or age limit, proper facilities for treatment of the related diseases at the MCH Calicut.


The Dubai Health Authority celebrates quality week

October 30, 2009

Courtesy by: ameinfo.com

The DHA will celebrate healthcare quality week from the 1st to the 4th of November, 2009. All DHA hospitals and speciality centres will take part in this event.

Dr Mohammad Al Olama, CEO of the Hospital Services Sector initiated this celebration to promote the importance of achieving improved patient care outcomes and healthcare delivery systems. This year’s theme is, “Patient Safety, Our Priority”

Al Wasl, Dubai Hospital, Rashid Hospital, DHA Airport clinic, the Thalassemia centre and the Harvard-affiliated Joslin Diabetes Centre will take part in this event.

On the 4th of November, the DHA will hold a seminar as well as conduct other awareness activities at the Rashid Medical Library Auditorium to discuss this year’s theme- “Patient Safety, Our Priority.”


Pre-nuptial tests outlined in handbook

October 30, 2009

Courtesy by: thenational.ae

A handbook listing the pre-nuptial medical tests and check-ups that people have to take before entering into a marriage has been jointly released by the Ministry of Health and the Marriage Fund Corporation.

The booklet is part of a series of projects put together by the two government institutions after Dr Hanif Hassan Ali, Minister of Health, and Dr Maitha al Shamsi, Minister of State and chairwoman of the Marriage Fund, signed a memorandum of understanding in June. Sixty-thousand copies of the book will be distributed through both ministries and also made available in clinics and medical centres, the government news agency WAM reported yesterday.

It will also be given to new couples applying for a Marriage Fund.

Dr Mahmoud Fekri, the executive director for health policy affairs, said the handbook was in line with a personal affairs law of 2005, Article 27, in which it is stated that medical tests are compulsory before marriage for anyone wanting to wed in the UAE.

The medical report must be presented before a marriage contract can be finalised and both parties have to be clear of all the diseases listed in the handbook.

These include inherited blood disorders such as beta thalassemia and sickle-cell anaemia; contagious diseases; and sexually transmitted diseases such as HIV and hepatitis B and C.

In March 2008, the MoH began providing services for pre-marriage tests through nine medical centres across the UAE.


Thalassaemia victim dies guiding others

October 30, 2009

Courtesy: Dawn.com

ISLAMABAD: ‘Should I rejoice that we’ll soon have a thalassaemia bill … or should I be sad that Salman isn’t among us to celebrate this news?’ wrote Ayesha Mehmood on her blog.

Ayesha is the sister of an unsung hero, late Salman Mehmood, who was running a website for the awareness of thalassemia patients.

After four days on ventilator, Salman succumbed to spinal meningitis at the Aga Khan University Hospital in Karachi on Monday.

Salman, also a thalassemia patient, was successfully running a website (www.thalassemia.com.pk) for the past few years from his home in Karachi.

The site was Salman’s contribution to spread the word about thalassemia – information otherwise not easily available.

‘We intended to create a general, massive awareness about the illness and to motivate people to support thalassemia patients’ Ayesha, also a thalassemic patient, told Dawn.

‘Salman was always on his toes to let the people know about the disease and was very social among internet users across the world and was managing the bread and butter for the family,’ 22-year-old Ayesha said.

She said: ‘The idea of developing an online medium was to facilitate people and families with thalassemia while all the information and support came from Salman.’

‘My father died few years ago while our elder brother also expired when he was 17 years old who was suffering from thalassemia, and now we are only two sisters and our mother’ she said.

The family is living in Garden West area in Karachi with no one to look after us.

‘Salman has done some awesome work and now I will continue his mission so we can save lives of many in future,’ she said.

Around 4,000 people from different countries have posted condolence messages and praised the efforts of Salman for creating an online awareness campaign with limited resources.

Ayesha asserted: ‘If we want to save our future generations, the government should make thalassemia tests mandatory for couples wishing to marry.’

Badar Khushnood, Pakistan’s Google representative, also a fan of late Salman, said: ‘He was a role model for the Pakistani youth and was a young entrepreneur. He has started earning from home through his website and without letting anybody know about his disease.’

‘I just learnt about him with his nick name – skdev – and also appreciated his work by commenting on his blog. Later, we met in a conference; Salman was a bright Pakistani as his work was truly commendable and he had helped.’


Meeting for Thalassemia Cause

October 29, 2009

Date: 27th October 2009
Time: 8:00 PM
Place: Usman Memorial Hospital, Karachi.
Cause: Thalassemia Awareness Further Plans.
Plans: Arranging more blood and awareness camps, getting mandatory tests bill passed in National Assembly.
People attended: Dr. Mustafa (Medical Director, Usman Memorial Hospital), Abdul Hameed Kath, Shamsuddin A. Noorani (Consultant- Alternative Medicine, DXN Intl. Pakistan), Musaddiq Hussain Lakhani (International Distributor, DXN Intl. Pakistan), Mustafa, Mr. Abid Beli and Mrs. Abid, Arsalan Nara, Asif Yahya, Hina Yahya, Hammad & Ayesha Mehmood

Discussion in points:

  • Explaining plan to Dr. Mustafa
  • Mr. Noorani & Mr. Lakhani brief introduction on alternative medicine (Red Reishi Mushroom)
  • Detailed discussion on Red Reishi Mushroom
  • Discussion over Hussaini Blood Bank and Transfusion centre & other centers
  • Dr. Mustafa’s idea of contacting Rafiq Khanani, who wants to do work in Thalassemia field
  • Arranging blood and awareness camps in Expo exhibition, colleges, universities & locality
  • Making arrangement for screening in discounted rate or free
  • Approaching bloggers, arranging competition to write detailed and best post about Thalassemia on their blog and win prize in the end
  • Gathering bloggers to write more and more about Thalassemia to make media pay attention to it
  • Writing letters to each and every ministry and try hard to pass mandatory tests bill passed in National Assembly
  • Making Thalassemia awareness brochure, CD

Drop your questions/advices/suggestions in Comment Box!


Salman Mehmood a.k.a SKDev (1985 – 2009)

October 23, 2009

Salman Mehmood the founder of Thalassemia.com.pk is no longer among us. He left this world at 2 pm PST on 19th October 2009 due to meningitis.

He was a thalassemic himself, 24 years old, working as a web developer for a US based company named ‘Directors Advantage’.

His dream was to save next generation from thalassemia, he wanted badly assembly to pass the thalassemia prevention bill and how unlucky of him that bill just got pass when he died…, he wanted to aware every single soul about thalassemia, he even mentioned his cause on a TV show, you can see the video on Youtube.

Rest about him I won’t write because other bloggers/journalist/writers have written on him a lot. As a brother he was a gem!

Am posting some of the articles/posts written on him, I will be including more whenever they are available to me:

In The Memory of Our Beloved Friend Salman Mehmood (@skdev)

Eternal Silence.. Dedicated to @skdev

Innal Lahi Wana Ilahi Raja’on

In the memory of Salman Mehmood

Salman (@skdev) will always live in our hearts

A Prayer for Salman – Inna Lillahi Wa Inna Ilaihi Rajeeoon

Those Who Met On The Way: Dedicated To Salman Mehmood #skdev

Gone too soon…

@skdev still alive in our hearts

Prayers needed

Pak thalassemia patient who blogged about disease, dead

The Laidback Show episode dedicated to Salman Mehmood

The Deduction

Salman Mehmood of ApniISP

Never too late … but …

Is there no hope?

My Friend, Salman

Thalassaemia victim dies guiding others

Bange-Dara [076] – The People’s Voice – Tribute to Salman

Blogger Salman Mehmood Died

If am missing any article that you know please mention, I want to gather all those articles/videos/posts all on one place.

May Allah grant him the highest rank of Jannah! ameen

-Ayesha (Salman’s Sister)


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