Jersey Country Revival concert to raise funds for anemia foundation Sept. 5

August 26, 2009

Courtesy by:

Michael Patrick’s 3rd Annual Jersey Country Revival will take place at Brewster’s Bar & Grill in Bradley Beach starting at noon on Saturday, September 5, 2009.

The concert showcases live 12 New Jersey Country music acts, features headliner John Eddie and benefits The Cooley’s Anemia Foundation, leading the fight against Thalassemia (

The Revival celebrates its 3rd year of showcasing Country music in New Jersey, while donating proceeds to The Cooley’s Anemia Foundation, whose mission is advancing the treatment and cure for the fatal blood disease Thalassemia, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley’s Anemia/Thalassemia major. An organization of personal importance to Patrick, as this is an illness that has affected his loved ones.

Michael Patrick is an established local performer, who recently shared the stage with such country superstars as Randy Travis, Rosanne Cash and Marty Stuart. Along with his success performing as a solo artist, Patrick currently fronts two bands, Michael Patrick and the Suburban Hillbillies ( and the Ring of Fire Band, a Johnny Cash Tribute (

Patrick is also founder of the Suburban Roots Concert Series (,, a concert promotion group whose mission is to support and promote artists in the Americana, Roots, Folk and Country genres in Patrick’s home state of New Jersey.

We are very pleased and proud to announce the addition of singer/songwriter John Eddie ( as headline performer for the Country Revival. John Eddie is a legend on the Jersey Shore, not to mention his success across the country, including regular appearances in Las Vegas, Los Angeles, New England and the Midwest. A true-grit rocker, once touted as the next Bruce Springsteen, Eddie’s musical journey led him into Country and Folk territory in recent years. His songs are witty, rollicking, honest and sometimes downright heartbreaking. His live performances are electrifying, leaving the crowd on its feet and shouting for more.

The show and continues until closing at 1:00 a.m. Featured local performers include: Michael Patrick and the Suburban Hillbillies, Bob Polding Band (, Ring of Fire Band, Victory Gin (, Rob Dye Band (, Old No. 7 (, BBQ Bob and His Only Friends (, E-Boro Bandits (, Rodeo Clowns (, Anthony Manno ( Chuck Schaeffer ( and Acoustic Thunder (

Sponsors of the event include: Colts Neck Custom Shop (Finest Guitars on the Jersey Shore), The Cooley’s Anemia Foundation, Brewster’s Bar & Grill, Suburban Roots Concert Series and others to be announced at a later date. In addition to the live music there will be raffles, contests, prizes and 50/50’s, with proceeds benefiting The Cooley’s Anemia Foundation.

Admission to the benefit is $10 from noon until 9 pm and $20 after 9pm. Guests can re-enter once they purchase their wristbands. All ages are welcome at this “family friendly” event at Brewster’s Bar & Grill, which is located adjacent to a bowling alley. Bring the whole family for an affordable day of fun and music.

For more information visit:

Mobilink arranges blood donation

August 22, 2009

Courtesy by:

KARACHI: Mobilink, a subsidiary of Orascom Telecom, organised blood donation drives at its offices nationwide for children suffering from Thalassemia and other blood diseases.

In total, more than 200 pints of blood were donated to Fatimid Foundation in Karachi and Lahore along with similar healthy blood donations to Sundas Foundation in Islamabad.

Organised under the auspices of Mobilink Foundation, employees were driven with the common goal of providing Thalassemics a chance to live with an improved quality of life. A pint of blood generally suffices three patients adding approximately two to six weeks in their lives. The contribution marks a commitment to societal and communal well-being.

Mobilink appreciated the work of Fatimid and Sundas Foundation for playing a very positive and supportive role in saving innocent lives and facilitating free of cost transfusion and treatment to needy children.

RSS, communist activists get together at Christ

August 22, 2009

Courtesy by:

Shimla: It was the first-ever voluntary blood donation camp organized in a church in Shimla and a surprise for many as people belonging to RSS and even those with ideology also came forward to donate blood along with local Christians and Hindus to support the cause of Children with Thalassemia. The camp was proof that voluntary blood donation is capable of demolishing the artificial barriers of our society.

The camp was jointly organized by Young Men’s Christian Association (YMCA), Shimla, and Umang Foundation at the 150-year-old Christ Church on the historic Ridge on August 9. The first donors, on the same bed, were Naresh Kumar and Jay Singh Thakur, SFI and RSS activists respectively, both students of journalism at Himachal Pradesh University. As many as 60 persons donated blood in the camp including Umang Foundation president Ajai Srivastava (76th time), Pratap Singh Thakur (45th time), Bharti Kuthiala and Jaya Sharma (both 26th time). Rev. Shamsher Masih, Father Xavier Herald and YMCA Shimla general secretary Naresh Scott also donated blood in the camp.

A veteran voluntary blood donor VD Kuthiala, who has a record of 151 donations in his name, while inaugurating the camp said, “It is a very touching moment for me to see young blood donors like Naresh and Jay Singh belonging to opposite ideologies donating blood on the same bed in a church compound. This would straighten the voluntary blood donation movement in the state. I appreciate Ajai Srivastava’s untiring efforts to bring people close through blood donation.” He also congratulated Naresh Scott for his initiative to organize such camp in a church.

Some children with Thalassemia were also present in the camp with their parents to express thanks to the blood donors. It was the 7th camp by Umang Foundation in support of children with Thalassemia in the last 14 months and about 500 units of blood have been collected in these camps. Ajai Srivastava said, “On an average every two months we organize a blood donation camp with help from different social organizations and the blood collected in these camps goes to the biggest hospital of Himachal Pradesh i.e. Indira Gandhi Medical College, Shimla.”

Naresh Scott said the response for the camp was encouraging and now YMCA Shimla would organize such camps twice a year.

Transfusion-dependent Thalassemia Patients Doubled – Rosmah

August 22, 2009

Courtesy by:

KUALA LUMPUR, Aug 9 (Bernama) — The number of registered transfusion-dependent thalassemia patients nationwide has nearly doubled in five years, to 4,385.

In 2004, there were 2,500 registered patients.

Therefore, the younger generation especially, who planned to get hitched or were seeking spouses, need to undergo blood screening test to determine whether they were thalassemia carriers, said the prime minister’s wife, Datin Seri Rosmah Mansor.

“Without any pro-active intervention, the number of new thalassemic cases will increase unabated, due to marriage between carriers.

“Currently, there are nearly a million thalassemia carriers in the country, which means about one out of 20 Malaysians is a carrier,” she said at the launch of Thalassemia Awareness Day 2009 here on Sunday.

Rosmah, who is also Thalassemia Association of Malaysia’s patron, said awareness campaigns such as this, would keep the interest and curiosity going, with the public constantly reminded of the disease and its transmission mode.

Thalassemia is an inherited form of anaemia or a blood disorder which is divided into Thalassemia Minor and Thalassemia Major.

Children of healthy Thalassemia Minor couples could suffer from Thalassemia Major.

Thalassemia Major is a very serious disease which, if untreated, can cause death to children aged between one and eight.

Team runs road race for twin girls in Bridgewater

August 22, 2009

Courtesy by:

BRIDGEWATER — To the naked eye, Alexia and Kailyn DeBoe appear to be normal, healthy 8-year old-girls who love SpongeBob, Hannah Montana, cheerleading, dancing and summer camp when, in fact, the girls have a rare blood disorder called thalassemia, which requires monthly blood transfusions to keep them alive.

The girls are the daughters of Anthony and Bridgette DeBoe of Bridgewater.

“They are getting to that age where their friends are asking them why they miss school once a month and why they go to the hospital,” said Anthony. “They tell them they get transfusions that, because of their illness, they need to have or they would die. They still don’t know the full details of what it is and why, but they know they need them.”

According to, thalassemia is actually the name of a group of genetic blood disorders, the most common treatment for which is red blood cell transfusions which the twins undergo monthly. These transfusions are necessary to provide the girls with a temporary supply of healthy red blood cells with normal hemoglobin capable of carrying the oxygen that the girls’ bodies need.

There is no cure.

Today, a team of 12 runners of the Bridgewater-based “Running for the Twins” team will run the 7.1-mile Falmouth Road Race to raise money to help offset expenses not covered by health insurance.

The team is comprised of family and friends, and was created five years ago after a conversation on the commuter train between Anthony DeBoe and Keith Buohl, whose family founded the team.

“We started the team because we are friends with the DeBoes and, if something like this happened to our family, we would hope our friends would want to help us out as well,” said Buohl.

The team has raised $46,000 over the last four years from friends and family as well as charitable donations from Dale Higgins at the Bridgewater Festival of Lights, the Bridgewater Board of Selectmen, and corporate sponsors such as Parc Blvd Inc., which owns Bridgewater’s Dunkin Donuts.

“There’s nothing like the feeling of coming over that hill and seeing the faces of my family and the DeBoe family waiting for me at the finish line,” said Buohl.

The twins say it’s fun to be there when the runners finish the race.

“It’s fun when Keith stops and talks to us and then he runs and finishes the race,” agree Lexi and Kailyn.

“It is hard to put into words how much Keith and his family doing this for the girls means to us,” said Anthony. “To know you have people in your life willing to take time out of their busy schedules to help the girls is very special to us. Words can’t describe our appreciation for all that they do.”

To support Running for the Twins, donors can send a check payable to the “Alexia & Kailyn DeBoe Family Fund” to Keith Buohl at 10 Fieldcrest Drive, Bridgewater 02324. For more information or to schedule a donation pick-up, call 508-279-3259.

Cord blood bank to be set up in Ahmedabad

August 17, 2009

Courtesy by:

A new collaboration between StemCyte Inc. of the US and Apollo Hospital Enterprises Ltd. now promises to bring about a revolution in the treatment about 70 diseases by introducing the ‘plasma depletion’ technology in India.

A Memorandum of Understanding between the two companies was signed at the Vibrant Gujarat Summit and the collaboration has resulted into StemCyte India Therapeutics Pvt. Ltd. This cord blood bank will be located in Ahmedabad and will have the patented technique of processing and storage of StemCyte Inc., announced the officials of the StemCyte on Thursday.

The technology of collecting high volume of stem cells called ‘plasma depletion’ which helps in successful therapeutic applications of umbilical cord stem cells can be used in the treatment of 70 different diseases like leukaemia, lymphoma, myeloma, thalassemia, sickle cell anaemia, fanconi anaemia and auto immune deficiency diseases. These diseases have been successfully treated with umbilical cord stem cells. The umbilical cord blood stem cells are fast emerging as a prime source of stem cells in the field of regenerative medicine, repair of injured tissues, nerves and organs.

According to Tushar Dalal, president of StemCyte India, the company plans to build 20,000 diverse units to help treat critically ill patients in India and abroad. He said, “Strategically situated in Gujarat, which has the highest frequency of Thalassemia patients, StemCyte India will spread the ray of hope among patients of this life threatening disease.”

While StemCyte has earlier signed two research and licensing agreements for human umbilical cord blood stem cell treatment of spinal cord injury, stroke, multiple sclerosis, Alzheimer’s disease, Parkinson’s disease, ALS, and other problems of the central nervous system, these research programs will be conducted in India by Apollo Hospitals and Cadila Pharmaceuticals here as well.

Blood Disease May Protect Kids Against Malaria

August 17, 2009

Courtesy by:

Washington, : In a new study, researchers have found that the blood disease alpha thalassemia may protect kids from malaria.

Alpha thalassemia is an inherited blood disorder in which children suffering from it unusually make small red blood cells that mostly cause a mild form of anaemia.

Now, researchers at the University of Oxford led by Karen Day, Ph.D., Professor and Chairman of the Department of Medical Parasitology at NYU School of Medicine, have found that having small red blood cells is an advantage against malaria.

“We made the surprising finding that packaging your hemoglobin in smaller amounts in more cells is an advantage against malaria,” she said.

“Alpha thalassemia is giving the child a hematological advantage by making more red blood cells.”

As a part of the study, researchers analysed around 800 children living in Papua, New Guinea, where malaria is endemic.

68 percent of children in Papua have alpha thalassemia. Dr. Day and her colleagues from the University of Oxford, Papua New Guinea Institute of Medical Research, and Swansea University, showed that kids with mild form of the disorder tolerated massive blood loss caused by severe malaria because they started out with 10 to 20 percent more red blood cells than unaffected children.

“It is really remarkable and so simple. Children with alpha thalassemia have adapted to the loss of red blood cells associated with malarial disease by making more of these cells with less hemoglobin,” says Dr. Day.

“So, these children do better because they end up with more hemoglobin overall when they have a malaria attack compared to normal children.

“We show that alpha thalassemia is giving the child a hematological advantage by making more red blood cells.

The study is published in the March issue of the journal PLoS Medicine. (ANI)

%d bloggers like this: